Thursday, May 3, 2012

Q and A

I have been asked several questions in the last 11 months I decided to answer them here.

How did you find out Mason had downsyndrome? F.I.S.H test was done after he was born

Did you know Mason had downsyndrome when you were pregnant? No not 100%

Would you ever consider an abortion if you knew? ABSOLUTELY NOT

Has your life changed since having a baby with special needs? yes  My life is more scheduled around doctor appointments, therapist and working with Mason and I have more fears and questions then I ever have.

Would you ever put Mason in a care facility? NO Mason will always live with his family.

What kind of health problems does Mason have right now? Sleep apnea (needing oxygen), reflux, heart defect ( needing 6 month checkups)

Is Down Syndrome inherited? The majority is not inherited.

Will Mason be able to live on his own? Well not real sure. I have read about adults living on their own with help. Mike was talking about what kind of person we would want to help Mason if he lived on his own and I told him that wont be necesarry his mom will be helping him. :)

Whats Mason like? A normal sweet baby. Loves to be loved, played with. Is shy with strangers the only people that can hold him longer then a couple minutes is Mom, Dad and his therapist Miss Mary.

How do you handle a baby with special needs? Im sure as he gets older I will have to deal with fighting for Mason to get what he needs with school, will have to deal with bullying and so on but as of right now just focusing on his health, and working on his gross motor skills, speech, and fine motor skills and spoiling him more then ever!!!

Other parents rather not discuss their child who has Downs why are you different and open?  I'm not ashamed of Mason because he is unique. I understand people have questions as long as they arent aimed negatively to me or very judgemental I have No problem answering.

Does Dylan know his brother was born special? Dylan loves his brother and thats all that counts. As he gets older if he has questions we will be open and honest. He did ask why all these people come work with Mason and I told him that he needs a little extra help and they are teaching mommy how to teach Mason how to do crawl, walk and ect.

Does having a baby with Downsyndrome add stress or affect your family relationships? Actually no not for our family. Going through challenges, and this journey alone being away from family and our family not having gone through any of this has made Mike and I rely on eachother. Doesnt affect Dylan we make sure he gets all the attention he did before. When Mason has doctor appointments or therapys I put Dylan in daycare to play or he is in school so his life doesnt circle around his brother. As for me Im an army wife, soldier is gone more then he is home so I do all the appointments alone which made me strong, and very appreciative for the little things.

Does anybody else in your families have a disability? No.

How did you take the news when you found out Mason was born with Downs? I cried like a baby, was overwhelmed, worried, scared, didnt know what to expect.

How do people get Downsyndrome? at the time of conception a baby inherits genetic information from its parents in the form of 46 chromosomes: 23 from the mother and 23 from the father. In most cases of Down syndrome, a child gets an extra chromosome 21 - for a total of 47 chromosomes instead of 46. It's this extra genetic material that causes the physical features and developmental delays associated with DS.

Your a young mom I thought older parents were at higher risk of conceiving a baby with Downs?


Maternal Age Related Risks
I was 26 when I had Mason! 1 in 1,176
Mom's AgeRisk for trisomy 21 (Down syndrome)Risk for all triomies
201 in 1,6671 in 526
211 in 1,4291 in 526
221 in 1,4291 in 500
231 in 1,4291 in 500
241 in 1,2501 in 476
251 in 1,2501 in 476
261 in 1,1761 in 476
271 in 1,1111 in 455
281 in 1,0531 in 435
291 in 1,0001 in 417
301 in 9521 in 384
311 in 9091 in 384
321 in 7691 in 323
331 in 6251 in 286
341 in 5001 in 238
351 in 3851 in 192
361 in 2941 in 156
371 in 2271 in 127
381 in 1751 in 102
391 in 1371 in 83
401 in 1061 in 66
411 in 821 in 53
421 in 641 in 42
431 in 501 in 33
441 in 381 in 26
451 in 301 in 21
461 in 231 in 16
471 in 181 in 13
481 in 141 in 10
491 in 111 in 8
 

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