The nurse informed me that Mason was unable to keep his body temperature. They put him in this bed with a heater on top to keep Mason warm. She informed me that when babies are sick, have infection or something is wrong their temps go down instead of up. The doctor came in to talk to my husband and I. She told us they were having troubles putting an IV in Mason. They tried several different places and several times. They thought he had an infection so they were going to give him antibiotics but were unable to BC they couldn't put an IV in. She also told us that Mason not being able to keep his temp. up was concerning so they called a pediatrician from another hospital to come take a look at Mason.
I was worried, scared, and completely clueless to what all this meant as it was COMPLETELY new to me. I was sick, in pain, hooked up to antibiotics and pain killers so I slept a lot. I woke up, looked over to where Mason was and the pediatrician had Mason in his hands. Holding him, looking him over. turned his head to one side, then the next. He realized I woke up, came and introduced himself, went back over to Mason and continued to look him over. Of course I asked him if Mason was okay. The pediatrician continued to look him over picking up his arm,letting go and it fell to the bed. picking up his legs lifting them up, letting go and they fell to the bed also,(very floppy) he took a deep breath, and of course I have learned all to well he was about to deliver news I probably wouldn't be fond of and he said to me " I don't know if you know about Down Syndrome but your son is showing many soft markers of it."
Instant tears. I felt myself feeling sick. What kind of markers do you see? I asked him. He informed me that Mason had very low tone, a Palmer's crease on his left hand, his ears were very small and lower then "normal" and his eyes were almond shaped and flat above the nose he told me Mason not being able to maintain his body temp. was also another "soft marker"
I thought back when Mike and I flew to Anchorage and got a 3D done and how CONFIDENT the ultra sound tech was that our baby was completely healthy and we had nothing to worry about. So we didn't get the Amino done which would of given us 100 percent if he did or didn't have down syndrome. I wasn't sure who to believe at this point. Mike was bringing our 5 yr old to a friends so he wasn't with me when the pediatrician was giving me his thoughts and concerns. So I text ed him and said "Get up here ASAP : ( DOWN SYNDROME" I'm sure he wasn't fond of this text but I couldn't get my fingers to type anymore, I couldn't even think!
Mike got to the hospital at the time the pediatrician told me they were going to take Mason to the other hospital where they had a NICU, and they were also going to test Mason for Down Syndrome. It wasn't long before they took my baby off in an ambulance, and my husband followed him in our car leaving me sick, hooked up to an IV in a hospital bed feeling helpless.
Mike was gone for hours, and kept updating me through text messaging. They had hooked Mason up to a feeding tube, oxygen mask, IV (in his head), still in a heater bed, and hooked up to different monitors to keep tabs on everything. (oxygen level, heart beats, etc.)
The next evening (2 days after I was admitted to the hospital) I was discharged. We went straight to the hospital where Mason was. He had to stay under the oxygen so I was unable to hold him. Was the worst feeling seeing your baby hooked up and there was nothing you could do. After standing next to him for hours, holding his little fingers, praying, and talking to him, we went home to get some rest so we could come back the next morning. Bright and early we went in, They moved him to an incubator and the first thing the nurse asked was would you like to hold him. I couldn't grab my baby fast enough to cover him in mommy kisses. After long visits we would go home, call the nurse for regular check ups and come back in. The nurses kept informing us that he was doing great. He had ways to go but he was fine. As sugar coated as it sounded I wanted to believe them.
The next day (Monday morning) we went into visit him, we held him, asked how he was doing and the nurse once again told us he was doing good. We were getting ready to leave when the doctor came into talk to us. She told us that they had concerns and he would need to be flown to Seattle Washington. She told us that I would fly on the life light with him and we could be there for 2 or more weeks.
Instant tears, instant anger What are they not telling us? The nurse said he was fine! Now he has to fly to Seattle? Life light? She told me we would leave in a few hours. My husband and I hurried home to pack my bags. I packed a shirt, and a couple pairs of pants in this big suit case. I couldn't even concentrate let alone pack a suitcase. Mike came in, looked at my suitcase and said I will help you, everything will be okay Stacy butt. At this point I wanted to believe him but I didn't. I sat on the bed watching my husband add shampoo, conditioner, more clothes, etc to my suitcase. We loaded it in the car, I continued to cry as I had NO idea what to expect next.
The doctor called me and said she talked to the pediatrician and specialist in Anchorage Alaska, and in Seattle Washington and they decided BC Mason was hooked up and reliant to the oxygen and heat that it was safer to travel to Anchorage. She told me Mason and I would be leaving in 2 hours.
I have never been so scared!
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