Saturday, March 24, 2012

May angels watch him through the night, keep him safe till morning light


Sleep study time! The moment of truth!
A 35 minute drive from my house to the sleep study clinic. Seemed like the longest drive. Im normally one to crank the music and sing my heart out while I drive but my mind was full of thoughts. I turned the music off reached back and held Masons hand. He was just a talking. I told him we are going to go see a doctor and he was going to be super brave. I told him I brought his teddy (which his dad and brother bought for him when he was born and has been in his crib when he was in the NICU, on the private jet when he was being transfered from one hospital to the next, and rode in every ambulance with him to be there for him when he is scared.) I told him mommy will be there and its okay to be scared because mommy was scared to.
We continued the drive my mind was racin. I wasnt worried about the tests I was worried about the results. Sleep Apnea means Mason stops breathing for longer then 10 seconds. That was one of the things the doctor wanted to find out about.
We arrived at the clinic parking lot had a couple of cars in it. We stood by the door and had to call the front desk so the nurse could let us in (doors are locked for security) The halls were empty, and very quiet. A nurse showed us to our room. There was a queen size bed with a very tall crib next to it. Another nurse came in. He introduced himself, talked to Mason then had me watch a video and fill out papers. The video seemed like a waste of time because it wasnt talking about a sleep study for a baby it was talking about a sleep study for an adult. And they were different.
After papers were filled out, video was watched the nurse came in with a cart. On this cart was ALOT of wires, medical tape, scissors, and tubes. We started off by laying Mason on the queen bed he put 2 wires on each one of Masons legs (for restless leg syndrome) he put 2 wires on Masons chest. One on each side. I buttoned Masons jam jams up (pjs) having the the wires come out in the same spot.
The nurse said "now heres the hard part!" I gave him that "OHHH SHIT" look. He chuckled and said I have to put 15 wires on his head. He took each wire and put this gunk on it that looked like crisco then stuck it in my babies beautiful dark hair sticking it to the scalp. After he got all of them stuck on he took a wrap and started wrapping Masons head making him look like he was in a coma or something. Mason was very Patient which I was surprised because it was 2 hours past his bedtime. Once he was wrapped up he took all the wires and wrapped tape around them keeping them together.
I told the nurse "you expect him to sleep with that big thing poking out of his head" He said "yup he will eventually fall asleep."
Eventually was the key word here. I laid Mason in his crib his eyes got big and he started screaming. I picked him back up cords and all. Cuddled with him and cried like a baby. I knew he was scared, uncomfortable and extremely tired. I held him for a long time just to comfort him. Laid him down putting my hand on his tummy and talking to him. Telling him he needs to go nite nite and when he wakes up we will go home to dad and brother. He eventually fell asleep after about an hour.
There was a video camera on Mason so the nurse could watch his movements he would come in to adjust Masons oxygen and to move Mason from tummy to back, back to tummy to see how his oxygen levels were and what not.
I dont remember falling asleep but I eventually did. The nurse came in about 6 turned on the lights to wake us. I instantly bothered him with questions
"How did everything look?"
Nurse "Everything was okay, pretty steady"
Me "really??? Did you have to turn on his oxygen?"
Nurse "once he fell in that deep sleep his oxygen level went from 100 to low 80s"
Me "Wait I thought you said everything was okay"
Nurse "well what I meant by that was I didnt have to call the emergency room"
Me "Okay just lay it on me what else did you see?"
Nurse "Well its not my job to tell you the polmonologist has to take a look at the reports then faxes them to your doctor then your doctor will discuss it with you."
Me "ohhhh come ONNNN you cant tell me anything?"
Nurse "his oxygen was in the low 80s I turned on his oxygen because if his oxygen levels were to get to 79 we would of had to call the ER."
Me "okaaaay? did you see any signs of sleep apnea?"
Nurse "your going to get me in trouble"
Me " come on give me a heads up."
Nurse " I can only tell you what I saw, I cant show you the reports, or tell you whats going to happen next."
Me "lets hear it."
Nurse " I did see sleep apnea. There are 3 kinds. The ones I saw with this little guy was obstructive (normally caused by low muscle tone, or enlarged tonsils) and I saw the sleep apnea caused from the brain. Neurological. I saw more then 10 episodes in an hour"
Me " IN AN HOUR?"
Nurse "Sleep apnea in an adult is somewhat normal and in young kids is severe. I dont know what your doctor will do next probably get his tonsils looked at, and removed then be put on cpap. Will probably up his oxygen through the night."
Me "WOW!"
Nurse "any other questions?"
Me " ummm nope Im about to call my doctor at his house!"
haha. Well I was kidding I knew I had to wait a week for the results to get to him. Ha you think Im going to wait a week? ummm no I will be calling Monday morning to get things rolling as fast as they can.
I will keep everyone posted on our next step...please continue the prayers.



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