Wednesday, August 22, 2012

6 months, One phone call, alot of tears

      My phone rang today it was Masons doctor "I got the results back from the sleep test done here in Colorado last week." I closed my eyes and crossed my fingers and she said " THE RESULTS WERE EXCELLENT! His oxygen level was more then 90%  One hundred percent of the time!" I couldn't believe my ears! I sobbed, then apologized to the doctor for sobbing in her ear then sobbed some more. She wasn't bothered. She told me that she put in the order to Lincare to pick up all supplies Mason will no longer need it. Of course the more she talked about this the more I literally sobbed! I picked Mason up and starting kissing him while still sobbing! FINALLY!
      At that moment I felt a million pounds lifted off my chest!Looking back I remembered the sleepless nights, all the tears from Mason, and the hassle the oxygen was to get from the oxygen company, all the sleep tests, and doctor appointments.

      Our journey to see if we could get rid of the oxygen went like this: We saw a ear, nose and throat doctor but he didn't see a reason to remove his tonsils and adenoids  because the sleep study showed more central apnea then obstructive also looking at his tongue (not an enlarged tongue) and the tonsils and adnoids (not concerning) he said it wouldnt make a difference. Then we talked to Masons doctor and he was convinced it was the high altitude and he suggested we moved. We just moved here less then a year ago and that wasn't something we WANTED to do however we would do if need be. So we pulled some strings with Masons doctor to allow us to do a pulse ox test in Iowa (lower altitude) and where our family is. It was approved! We did a pulse ox after a week of being in Iowa so Mason could adjust and we could see if the altitude was the problem.

      I talked to Masons doctor about the Iowa results and he was 90% 94% of the time which was a HUGE improvement. This doctor also agreed that a move would be necesary. I asked her if there was anyway that maybe Mason grew out of sleep apnea (I have researched and they say about a year they grow out of it) She told me that would be a possibility. I then was the annoying mother and requested ANOTHER sleep test using the pulse ox. Which was the results I got today! The results we got today was actually BETTER then the Iowa results (done about a month ago)
      Getting Mason ready for bed would require putting the oxygen tube through his pjs, fighting with him to get the nasal piece on, lots of tears, calming him down, him falling asleep, me checking on him, me putting the oxygen BACK on, him crying, me calming him down...repeat. Tonight I kissed him, laid him in his bed and he is peacefully, SAFELY sleeping! I still have this urge to go check on him as it was the last 6 months routine EVERY NIGHT. I will have to get passed that and try to sleep!
      Looking back it has been a pain to try to find the resolution but right now Im happy for Mason and relieved! : )   Thanks everyone for the on going prayers! XOXO

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