Thursday, August 21, 2014

Hes 3!

Mason will talk to anyone! As long as they don't touch him!

LOVES apples! I have to cut him off because he will eat one after another...

Always on the go!

Has recently learned how to sit on a regular swing and hang on...He knows when we arrive at the park and whew it is not fun leaving the park. Lets just say he's not this smiley.

ICE CREAM ICE CREAM He will scream for Ice Cream! I have taught Mason to sign for popsicle and Ice cream which is a sign I wish I never taught him. ha ha 

We were weeks away from getting Mason his own stair railing put in but he decided he didn't want one and is now walking up the stairs!


Still loves water!

Mason loves to read! What I find interesting is when kids watch TV kids will copy what the character on tv is doing but Mason he will copy from a picture in a book! For Example: Mickey mouse has his pointer finger on his chin, when we turn to that page Mason will do that exact thing after looking at the picture. He does this on every page!


About Mason...
Favorite food: Pasta! Anything with noodles
Favorite snack: Apples & popsicles
Favorite toy: Barney that sings, and Mickey mouse that whistles
Favorite book: All of them
Things he can do: Say more then 30 words, Sign more then 50 words, walk, walk up stairs, eat using silverware, drink from an open cup
Things we are working on: More sign, PECS, walking DOWN the stairs, potty training
Things Mason doesn't like: Crowded places. We solve this by putting him in his stroller with his IPOD and earphones.
What Mason loves: Mason LOVESSSS to be center of attention! When we go places he will approach a person and talk nonstop then go to the next person.
Ways of communicating... Sign, bringing things to me to show me what he wants sippy cup, empty plate, help turning on toys) and his new way is grabbing my hand and pulling me through the house to what he wants.
Medical: no issues, every 2 year appointments for cardiology, been cleared no longer needs braces for his feet (sure steps), usual checkups and shots.

Here we go...


 
 


First day of school…

The first day of school was difficult. When we first arrived at the school the kids were supposed to get in a line behind their teacher and hold the back pack handle of the child in front of them. I put Mason down to show him and help him but he ran away. He wouldn’t stay in line. So I walked him into the class room bc there was NO ONE to help him. When we got to the class room Mason ran right over to the rug to sit down. The teacher explained the routine to the kids. When arriving in the classroom they were to hand the teacher their folders, hang up their back packs, stand in line to wash their hands then sit at their desk and color. The teacher called out each child’s name and showed them where to hang their back pack. When the teacher called off Masons name….he was skipped. They didn’t help him, and show him, they just skipped him. At this point I didn’t want to leave. I didn’t feel comfortable. All the kids were in line to wash their hands and Mason was sitting on the rug with his back pack. This was EXACTLY what I didn’t want. I wanted him to be treated like the other kids and to have help to be able to do what his class mates were doing. Standing there a few minutes and realizing no one was going to help him, I took his hand to help him stand in line to wash his hands. When it was his turn the teacher was going to help him. He walked right into the bathroom, and Mason darted for the toilet while no one but myself saw him. (We all know what happens when he sees a toilet.)

It got to a point I was convinced I was never going to leave or I was going to take him with me and throw in the towel. But as I watched Mason getting help to wash his hands I took a deep breath, waved bye and left. I was there about 30 minutes. It’s hard to watch your baby grow up and not need you but harder not knowing if he was going to get the help he needed to succeed in preschool. During our meetings before Mason started school the team we were working with kept saying to me “We are professionals! He will be fine!” So I was holding them to it. One thing I don’t want, is to be on the teacher bad side before giving her a chance to learn about mason, to learn what his disability entails.

When I left him he wasn’t crying, and when I went to pick him up he was playing on the playground not crying. But I was informed quickly all he did was cry since I dropped him off till they went outside. He didn’t participate, didn’t eat snack, and cried so much he fell asleep. Of course when I hear that I think….”Did you help him?” “Was he alone?” “Was he frustrated bc he wasn’t getting the help he needed?” That night I drove myself nuts thinking about his first day of school. My husband came home from work and asked me how Masons first day was and I just cried.

 

Second day of school…

Every time we would go to Masons school if it was to fill out papers, IEP meeting, talk to the teacher, orientation I would put his back pack on so he would start to understand when he was going to school. The second day of school he caught on quick. He wasn’t having it! When walking to the car he would sit down on the side walk and not move. Nope, wasn’t interested. When we got to school still no help on walking him into class, So I walked him in again. Down came the tears. He knew what was going to happen. I hung up his back pack, stayed to help him wash his hands, and color with him a minute before sneaking out. I stood at the window and watched him for about 15 minutes. I watched him look around the room then start his pouting lip before crying. Talk about heart breaking. I wanted to run in there and take him with me!  When I picked him up the teacher told me he cried about 10-15 minutes when I first left then was fine. He participated, and ate snack. They had an assembly and mason showed off his dance moves. The teacher also told me she wanted to start a communication book. Every day she will write what he did, how he did, what he ate, and little notes. I was feeling a little more at ease. When I got home I started going through his back pack and found a paper that Mason colored. I was sooooooo excited to see he participated. BUTTTT then I flipped the paper over where there were letters to trace, color, and cut out and realized there was NO indication Mason did anything on that side. So again I thought…Why didn’t he have help? Why is he not expected to do what his classmates were doing? During therapies we would trace, color and cut by using the hand over hand method so why couldn’t the school? At this point I felt I was dropping Mason off at a daycare, not a school to learn.

 

Day 3

Same routine in the morning, I walked him in helped wash his hands, sat him down to color. The teacher told me she wanted me to start kissing mason, telling him I was leaving, then say goodbye instead of sneaking out. She felt he would be less sad bc he was pre warned I was leaving. So I did. He cried about 5 minutes they said and had a good day. On this day the classroom helper said “Ive been working for him to sign more, all done, drink and eat. He doesn’t want to sign. I told her….. He knew those signs and actually knew about 50 signs. She looked at him and said “I see what your doing.” Ha ha

 

Day 4

Same routine, I told him bye and left. Watched him cry. It didn’t seem like it was getting any better but the thought of the teachers telling me he would have a good day after the initial leaving made me feel at ease in a sense. When I picked him up I heard all great things, and was asked to write down all the signs Mason knows so they can encourage him to use them and teach him new signs. 59 signs is the number Mason can do. Woop Woop! In his back pack there was a brown paper bag that said put 5 items that tell about you…what you like, your favorite color ect. Oh boy, I stressed out about this bc I knew he would just sit there at school with no help so I thought of a little plan. I put in his favorite toys and a picture of him and his brother. These were things that when he sees he will sign immediately. The toys I put in was Mickey Mouse, Barney, a ball, a book and a picture of him and his brother. I also wrote a note saying what his favorite things were and a little about them.

Day 5

Mason goes to school Tues through Friday so I knew after having a 3 day weekend it was going to be difficult for him. And that it was. He was clinging on me and wouldn’t let me put him down. Didn’t want to sit on the rug, didn’t want to wash his hands. It was day one all over again. Im getting a little stronger and was able to pry him off, hand him over and leave. That was a big step. He had a great day but was very excited to see me! His teacher told me today that Mason may need to do “extended school” which is summer school. She said it could benefit him if he is struggling getting back in the routine after a 3 day weekend.

Day 6
      This day was easier, I walked Mason in his class and left. He was busy talking to a classmate. His teacher later told me he cried once he realized I left. Cried about 5-10 minutes. Today was the day he met his speech therapist. She wrote me a note, thanking me for the lists of signs Mason uses and also wrote she was taking this session to get to know Mason. She also wanted to know if we were using the PECS system. Which is a picture system. I recently have started this and found it to be successful for Mason.
Day 7
      "Bye baby, momma loves you." in return a little smile and a wave. I didn't have to walk him to his classroom, In our communication book I was told he didn't cry at all today!!!!

One thing I have learned in the first 7 days of Mason starting school is PATIENCE!!!! I'm trying REALLY hard to be patient. But I DO know and feel in my heart Masons teacher wants what's best for Mason. After all she fought to have him in her class after meeting him. This is a new journey, and I will find my way...eventually.

Tuesday, August 19, 2014

New chapter...


I get asked all the time if Mason is my only child because I act like a new mom with him. He is NOT my only child but I act that way with both my boys. I usually get asked this when asking a lot of questions, needing a little reassurance, and being a very and I do mean VERY involved parent. Truth is although Mason isn’t my only child or first child or this being my first time entering into the school district. This is a new path for me. Dylan and Masons paths are so different. So Mason being in the school it is new to me.

When Dylan was in preschool he went to a private Christian preschool. The things I wanted to know before deciding if this was the right school for him was…What kind of things will he be learning? What do they focus on? Discipline? What kind of environment will my 3 year old be in? As I was sitting in Mason’s school I realized my questions were very different. The things I wanted to know before Mason started school was…Who is going to help Mason cut, color, follow directions (because he doesn’t understand YET) What is going to be the method to diffuse the head banging? What’s the teacher/student ratio? Masons main means of communication is sign language. Is this going to be valued and taught? Or is sign language going to be disregarded. Have you (teacher) worked with a child with Down syndrome? How long have you been teaching? Do you have an open door policy? (Where I can stop in anytime I want/need) Can I have a team meeting when I ask? (Team meeting is to have a meeting with all the helpers, teachers, and therapists to get a review and see what they are working on and where Mason is learning wise.)

 
The answers to the questions I asked Masons school was… There will be a helper in the room for all the students so if mason needed a little assistance for cutting, coloring ect she would be able to assist. Head banging they would move him from the situation. His teacher hasn’t dealt with head banging so she was going to have a plan before he started school. (Before school started Mason no longer bangs his head) Sign Language will be valued and his speech therapist will teach him sign language along with verbal language. Masons teacher has been teaching for 6 years and no prior experience with a child with Down syndrome but there has been a few kids in the school district with Down syndrome. Open door policy is a yes, and yes I can have a team meeting anytime I want.

 

As a parent I want Mason to be comfortable and transition easily bc this is the first year of many in the school system.

 

My concerns for the school year…
*He will hate school
*Will be categorized
*He won’t be challenge or expected to do what other students his age are doing
*He will be frustrated bc of not being able to communicate other than sign language which I was told his teachers know a “few” signs.
*Not making friends bc of not being able to communicate with other kids other than sign language.

 My requests to the teacher…
To have a teacher with structure. Same routine.
To be able to have the same teacher both years of preschool
And to have a morning class because he was used to doing all his therapies in the mornings since he was a baby.

They accommodated all of my requests.